I heard from a dear friend whom I actually 'met' on an online MS (Multiple Sclerosis) forum. She has been struggling for years with symptoms of MS with lots of clinical evidence, that is, objective evidence her doctors can observe, but without abnormal test results to meet the set of criteria needed for diagnosis. We are in the same boat in this way. The boat is uncomfortable, has no captain, and is going nowhere in particular. We're drifting at sea.... and not coordinated enough to stand up, tie on a life jacket and jump out!
Well, this dear friend just told me that she had a recent MRI and her internist called to say there was evidence of demyelination!! Yea!! Go girl!! So happy for you!! Whew!
Wait a minute....that just doesn't sound right. Her doctor found something awfully wrong with her brain. Evidence of a degenerative disease with no cure. I should not be happy. And I'm not. I'm not happy that she struggles with being in a body that does not work as it once does. I'm not happy that she struggles with fatigue and weakness. I'm not happy that she is an energetic woman trapped sometimes in a body that has betrayed her.
I AM, however, happy that there is a test result for her now which says to her internist, "See? THIS is the reason for all the symptoms I've been reporting to you." I AM happy that her doc has referred her to a neurologist, an MS specialist, so that she will HOPEFULLY get a diagnosis, once and for all. I AM happy that IF this specialist gives her a diagnosis, she can finally, finally get treatment.
So, Yea!! Good luck, and God bless you, my friend!! Prayers up!
Well, this dear friend just told me that she had a recent MRI and her internist called to say there was evidence of demyelination!! Yea!! Go girl!! So happy for you!! Whew!
Wait a minute....that just doesn't sound right. Her doctor found something awfully wrong with her brain. Evidence of a degenerative disease with no cure. I should not be happy. And I'm not. I'm not happy that she struggles with being in a body that does not work as it once does. I'm not happy that she struggles with fatigue and weakness. I'm not happy that she is an energetic woman trapped sometimes in a body that has betrayed her.
I AM, however, happy that there is a test result for her now which says to her internist, "See? THIS is the reason for all the symptoms I've been reporting to you." I AM happy that her doc has referred her to a neurologist, an MS specialist, so that she will HOPEFULLY get a diagnosis, once and for all. I AM happy that IF this specialist gives her a diagnosis, she can finally, finally get treatment.
So, Yea!! Good luck, and God bless you, my friend!! Prayers up!
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ReplyDeleteI’ve been following and enjoying your blog for a while now and would like to invite you to visit and perhaps follow me back. Sorry I took so long for the invitation.